Empowering the Lymphoma Research Foundation’s Technology and Data Strategy

Introduction

The Lymphoma Research Foundation is the nation’s largest nonprofit dedicated to advancing research, education, and support for those affected by lymphoma. Grounded in the belief that the power of science and people together can eradicate lymphoma, the Foundation connects patients, caregivers, scientific, and healthcare professionals with vital resources. However, like many nonprofits, the Foundation faced challenges managing vast amounts of data and using technology to maximize their impact, requiring a strategic approach to set them on the right path.

The Problem

While the Foundation was founded on dedication to eradicating lymphoma, their existing systems made it difficult to see the big picture of how patients were interacting with the Foundation in a 360-degree way. Disparate systems for constituent management and engagement created silos of information, preventing them from fully understanding how different data points connected across the organization. This lack of connectivity affected their ability to effectively track key metrics, engage their community, and align their initiatives with the foundation’s broader mission.

Additionally, the Foundation needed strong leadership to bring their data and technology in harmony with their ambitious “Impact Roadmap.” Our Build Consulting CIO ensured that there was a clear strategy and Roadmap to ensure alignment between their tools, goals, and the people they served.

Build Consulting’s Approach

Stepping into the role of a trusted partner, our team worked closely with the Foundation to address these challenges with an emphasis on change management. Here’s how we tackled their technology transformation:

Interim CIO Leadership:

We serve as the Chief Information Officer (CIO), overseeing the data and technology team while bringing expertise and vision to align leadership on the foundational role technology would play in achieving the Foundation’s mission.

Assessment and Roadmap Development:

We began by conducting a thorough assessment of the Foundation’s existing systems and processes, showing pain points and opportunities for improvement. From there, we developed a comprehensive Technology Strategy and Impact Roadmap to guide future decisions.

Constituent Journey Mapping:

To better understand how to engage their diverse community, we worked with the Foundation to map out key constituent journeys. This ensured that every touchpoint—from resources for patients to donor engagement—was designed for a seamless and impactful experience.

Data-Driven Metrics:

Organizational KPIs were established to measure and evaluate progress effectively. These metrics provided the foundation for an improved analytics infrastructure, giving leadership insights into performance and impact.

Foundation for AI Initiatives:

Recognizing the potential of AI, we built a robust CRM data platform that became the backbone for future innovations. This included tools for creating accessible content, such as resources tailored for Spanish-speaking constituents, increasing inclusivity across their programs.
By fostering alignment between data, technology, and mission, the Foundation is now positioned as a forward-thinking leader among nonprofits.

Results

The implementation of a unified strategy delivered meaningful results across all facets of the organization:

Enhanced Technology Leadership:

IT is now a valued collaborator in key projects and initiatives, with leadership recognizing its integral role in achieving the foundation’s goals.

AI-Driven Innovation:

The new data platform supports next generation AI initiatives, such as tools to make educational resources more accessible, including content for Spanish-speaking constituents.

Improved Constituent Engagement:

The conversion rate for individuals consuming key resources has increased significantly, helping to connect more patients with potentially life-saving treatments.

Expanded Donor Base:

With better insights and engagement strategies, the pool of potential donors has grown, bolstering support for research and programs.
These achievements reflect not just operational improvements but also a profound impact on the lives touched by the Foundation’s mission.

Conclusion

The partnership between the Lymphoma Research Foundation and our team showcases what’s possible when technology, data, and mission come together. By eliminating inefficiencies and fostering a culture of collaboration and innovation, the Foundation is better equipped to support their community and advance their research goals.

Looking ahead, the Foundation is poised to harness new AI initiatives and data-driven strategies to deepen their impact even further. Together, we’ve built a scalable technology foundation that ensures their mission continues to thrive.